Remember to blog these topics:
Pain—nothing makes it go away , head/headaches, feet, hand and back. (what I call chili pepper head pain)
Whose shoe’s are those anyways? - 8 yrs. Post accident— My 1st incident of being unable to “recognize the familiar”
Thinking that you’re well enough to work a full time job— post tbi confidence
Denial
Hope
Failure
Coping
Discussion of receiving SSI/Disability then saying “I can do it” but then I lost 3 jobs in a years due to tbi and I had the burden of getting disability reinstated. Discuss red tape.
Medications— Can’t recall every Rx that I’ve been prescribed in the last 8 year
Discuss side effects and how medical professionals can not tell me whether the medications are causing the side effects or are the symptoms a result of my injury.
Decision making and Grocery shopping. - Paper or plastic? Organic or not? Cash or credit produce, canned or frozen? Discuss how it takes much more time to make a decision and often not being able to.
Confusion in arguments—
Concentration and focus in a conversation-
No background music please while I’m trying to focus on the task at hand. –q
Short term and immediate memory loss—What was your name again?
Napping— Just can’t keep my eyes open why do I have to explain this to “you”
“You don’t look disabled” - Because I’m not in a wheelchair, blind, deaf or some other visible disability people think that I can’t justify or qualify as being disabled because of a severe traumatic brain injury. And I quote from some of them, “what do you do with your day”? Or “Gosh, I wish that I had your life” I tell them that what I do is try to find a position in which I’m not in pain and I don’t wish a tbi survivors life on anyone.
Add— coping mechanism used to deal with the above.
